Research

The Schneeweiss Adult Congenital Heart Center has a robust research program with a particular focus on conducting clinical and translational research to improve the care of our most complex patients.

Active multicenter research projects:

  • FOSTER: a multicenter Fontan transplant study
  • CHIRON: a multicenter ACHD patient registry
  • PCGC 3: a genetics and clinical outcomes research study
  • Adult Congenital Heart Association sponsored patient-centered study on anxiety in ACHD
  • Hypoplastic Left Heart Syndrome genetics and ventricular function study
  • Clinical and Translational Science Awards sponsored Fontal liver biomarker study
  • Hepatocellular carcinoma in Fontan patients multicenter study

Active single-center research projects including:

  • Pregnancy outcomes in patients with ACHD
  • Impact of pulmonary valve replacement on quality of life in patients with tetralogy of Fallot
  • Stroke in patients with ACHD
  • Serial changes in systemic right ventricular function by cardiac MRI in patients with D-transposition of the great arteries and congenitally corrected transposition of the great arteries